Showing posts with label COPD. Show all posts
Showing posts with label COPD. Show all posts

Friday, October 18, 2013

Dying to Live, or Living to Die

I wonder if anyone of you realize how fast the end of this disease (COPD) can come upon you.
My husband went to hospital with pneumonia and an exacerbation because of it. He got worse, got better, got worse, got better. Then he tried to sit up unassisted in the bed and the doctor is saying, "This is end stage. Do you want kept alive by machine and stuck in a nursing facility, or not?" And, before we could even take that in, he crashed again and the goal was to keep him alive until his daughters came.
Of course, he lingered after that, even so still reluctant to leave us.

The point is, it all happened too quickly. We knew it would come, someday, and some day soon, and had discussed things in general -- health care directives and funeral 'plans' and such.
I urge you to get specific.
Do not make your loved one have to make the decision in the space of a few minutes or a couple hours.
Talk to your doctor about how it ends.
Talk to your family about how you want to end, and where.
Write it down somewhere.

Then go back to your business of living every day and enjoying every breath you take while you are taking it.

We all know that death is waiting for us. Those with chronic illnesses such as this know it more than the general population does. We know that we can have choices to make and there are choices our loved ones will have to make.
But do we want to put the burden of our decisions on their shoulders?

Know what you want, exactly, precisely.
Tell them what you want.
And now that this business of dying has been settled, go back to living.
.
Thoughtfully.
Gratefully.
Fully.

Wednesday, September 4, 2013

Fading Out

Rex is down to 84 pounds. He is better but not doing as well as the doctor thinks he should be, and has given him a prescription for prednisone. He told Rex about all the drawbacks with the daily prednisone. the most concerning is that it can cause osteoporosis. Rex already has severe osteoporosis. Oh, yay, Rex gets to choose between working bones or working lungs, when neither is working as it is, and never will work correctly ever again. At least the prednisone gives him a little bit of an appetite.

And Tracy tells him to "Get well." Like that is ever going to happen.
And she starts yelling at me when I tell her so.
Why?
Because she doesn't want to think about it.
I guess I do. It's my favorite reflection, I guess. How much more miserable he will get, how much frailer he will become, etc.
I'm already watching him disappear, one pound at a time. If he stays at a pound a month, that's 85 months before he disappears completely. @ 8 years. Of course he will be gone long before 0 pounds.
I wish I could go first, but then no one would take care of him.
Why not?
Because they don't want to think about it.